Thursday, 10 March 2016

''How are you finding it Lizzie?''

*mouth opens wide, a deep breath of air inhales into lungs..*
*Come on Lizzie you can do this, don't keep telling your fatigue it's winning... please*
*okay brain, shut up lets go*

As I lift my left arm into my coat hoping I've chosen the right one
*what if it rains??, oh wait you've got a hood its cool.*
*no seriously brain you're making me tired*..
I check I've got everything;
drink (with enough sugar to stop me fainting)
tablets ( because lets face it, you need those 9 evening tablets to keep you sane)
epilepsy card (because no one seems to have a clue what the recovery position is..)
* shit lizzie, what if you have a huge seizure, i mean you haven't had one for ages but remember you've never done a long day like this*
*right Lizzie, you're anxiety needs to leave. its an incurable illness, so.. deal with it.*

My left leg steps forward to the door;
my right leg follows as I shut the door behind me I look to the top of my long narrow road..
I make my escape from a place i spent a year sitting in.. ( I walk to uni)

It takes me 10 minutes, with a few set backs by a second with the crossroads on old dover road..
you know, opposite the college?.

I always check my reflection from the side in windows as I wander past, checking I'm walking okay
Telling myself constantly that I walk perfectly normal, just with this strange bulge on my left calf, where my AFO splint holds up my slowly improving drop foot..
Making people probably wonder if I've broken my ankle..

I hold my arm against my stomach, under my coat, sometimes letting go ( on the sly) to see if its resting by my side enough to let go..
*Liz, you're hands showing, the slightly clenched fist*
*Yeah and what? I've had my nails done..*

I walk holding my head high, sometimes if I don't tighten my splint tight enough I trip a bit but I walk okay other than that set back.. I hide the trip well



*okay Lizzie people won't read this..*



I got to the coach ready for my 7 hour uni trip in London.
Wondering if its a good idea.

I'm on the coach now, its left, everyones ready..

''okay guys fill in your health declaration forms please''

so I did as I think its probably for the best..

1 hour, no naps later..

''were meeting here at 7''

We wander to brick lane, slight detour to find the sights of where jack the rippers victims were found..

As we reach brick lane we head straight to the bagel shop..

arm flicks out, eyes roll to the left and you get anxious
*oh my god Lizzie, you've just had an absent seizure*

Carry on to spitalfields..

My feet ache and my blisters are throbbing,

as people walk fast past me some nudging some avoiding us, I walk as fast as I can to catch up with everyone,

2 hours later 
two blisters and about 20 absent seizures..

We reach white chapel gallery to watch some guy (Lance Wyman) do a ''talk''
for 2 hours!!.

head starts rolling forward, eyes get tired and a headache kicks in..

*Lizzie you had a free drink, why didn't you get alcohol? urr because i'd be drunk?*

''Okay thats my lecture done''

*bloody hell, thank god!*


The stairs down had about three flights and I'm still walking one step at a time..
The traffic jam builds up behind me..

We leave London, and arrive to Canterbury at 11.


Second uni trip done!
my fatigue isn't even that bad today..





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