MY 'STORY' (updated)

I've started writing more recently and try to explain in a much better/in depth way of how I almost 'cope' through I guess you could say (my life)..

For starters, the name of this blog was chosen and kind of decided on something my specialist said to me about how recovering from a stroke would and will be..

'Training for a marathon'
My mum is to thank for the idea of writing a blog and I'm so greatful for her help through structuring my writing..
I've had the whole "so when's this marathon?"
*urgh REALLY?!* I never ran before my stroke and I've basically only just learnt to stand on my own two feet without wobbling..

My 'STORY' consists of a looooong list of 'pain' struggle and stress?

'Nephrotic syndrome' which the daily mail called (nephritic syndrome) WRONG!
something I've had since I was 15 months old, it's either my mum or Nan who says "LIZ, I'm sure someone kissed you when you were a baby who had a cold and it affected your immune system' *great!*
It's an illness that affects a 'tiny' part of both my kidneys.. they leak protein which causes me to flare up and retain fluid on my ankles spine and face, this is why I sometimes relapse and have to take steroids and so many more tablets..

'Benign Intracranial Hypertension'
I had a really unhealthy lifestyle when I was about 15/16 that made it impossible to lift my head as I had such bad migraines due to I think fluid on my brain it also caused a sezuire (my mums literally only JUST found out I've never smoked or done actual drugs..) like 10 years later? *i think she was really shocked*

STROKE
yes that's why you're all here and hopefully still putting up with my spelling mistakes and constant life stories.

But I had TIA'S which are mini strokes for about 4months? I'd say about 4 a day, with my face dropping and arm completely numb, a nurse said it was a trapped nerve but where I suffered really bad anxiety that didn't help with the 'believing' my symptoms..

I'd walk diagonal and just be exhausted where my brain was shutting down..
That is normal..

I remember blaming the nurse for SO long, literally calling her every name under the sun because I accused her of making it happen.

EPILEPSY
well you all know what that is and it was caused by my stroke. :)

Now I realise and found out, they couldn't prevent  the blood clot as it  was so large that it couldn't be 'dissolved' which i think (from what I remember) caused me to nearly have an operation on my brain thank god I didn't!! I love my hair to much..

Essential Thrombycothemia (JAKI2)
This is a blood condition that I was diagnosed with AFTER my stroke.. when I say after, like two years?! Some strange nurse took a blood test then never gave it in, so now I'm on chemotherapy and iron tablets, I think it's where I produce to many platelets in my blood, this can also cause leukaemia (a form of cancer) which lets all pray it doesn't!!!

And yes thats finally it people!! To those who've taken the time to read about my amazing life, Infact it isn't even bad, I just get on with it.. you have to? What's the point in moaning and feeling sorry for yourself, I lost all my old 'friends' because of pretty much everything..

But this blog will continue to follow my journey through life, hopefully you enjoy continuing to read it..

You too will be 'training for a marathon' :)